Health cyberactivists: the multiple young friends for sclerosis

Authors

  • Raquel ALS Venera Universidade da Região de Joinville, UNIVILLE
  • Wesley Batista Albuquerque Universidade da Região de Joinville, Univille
  • Roberta Fernandes Buriti Secretaria de Educação de São Francisco do Sul, SC Universidade da Região de Joinville, Univille

DOI:

https://doi.org/10.5212/PraxEduc.v.14n3.020

Abstract

This article tries to understand the subjectivation movement of a group of young cyberactivists diagnosed with Multiple Sclerosis that are investing in the change of the illness’ social meaning and of the patient’s identity. Their actions are online, but they also act in physical bodies of public health policy decisions. According to Tourette-Turgis (2013), we acknowledge the narrative of these young people, who, before the illness’ diagnosis, search and organize knowledge about themselves or a (self-)developing process of learning with the illness. With Malini and Antoun (2013), we try to understand the cyberspace as a rhizome in which multiple articulations multiply about health/illness as well as a new profile of the social movements and non-governmental organizations. These subjectivations are paraphrases of domination systems moderately known, but, overall, to new regulations in friendship processes as a path to self-care (FOUCAULT, 2004).

 

Keywords: Narratives. Subjectivities. Cyberactivisms.

Author Biographies

  • Raquel ALS Venera, Universidade da Região de Joinville, UNIVILLE
    Professora do Programa de Pós-gradação em Patrimônio Cultural e Sociedade e Curso de História, ambos da Univille
  • Wesley Batista Albuquerque, Universidade da Região de Joinville, Univille
    Mestre em Patrimônio Cultural e Sociedade, pela Univille
  • Roberta Fernandes Buriti, Secretaria de Educação de São Francisco do Sul, SC Universidade da Região de Joinville, Univille

    Professora da Rede Pública de Educação de São Francisco do Sul

    Mestranda no Programa de Pós-graduação em Patrimônio Cultural e Sociedade da Univille 

Published

2019-09-23

Issue

Section

Dossiê: Jovens e ativismos em (des)construção: socializações e (in)ações políticas

How to Cite

Health cyberactivists: the multiple young friends for sclerosis. Práxis Educativa, [S. l.], v. 14, n. 3, p. 1162–1187, 2019. DOI: 10.5212/PraxEduc.v.14n3.020. Disponível em: https://revistas.uepg.br/index.php/praxiseducativa/article/view/13467. Acesso em: 14 may. 2026.