The unknowledge of hemophilia by physicians and teachers: the need for qualified educational training
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Abstract
The present study had as general objective to analyze how the relatives of hemophiliacs are informed
about the diagnosis of hemophilia. The specific objectives presented the strategies elaborated by the mothers
to overcome the difficulties and discuss the need for educational campaigns to inform about hemophilia. This
is a qualitative research that used as methodology case studies with interviews with five family members of
hemophiliacs. The data collected were assessed using the technique of content analysis proposed by Bardin
(1994). The results have evidenced that mothers passed through several processes when they knew the diagnosis
of hemophilia of their children such as: learning about the pathology, fears, uncertainties, guilty, acceptance,
adaptation, overprotection, and overcoming.
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