The participation of children with Congenital Zika Virus Syndrome: intersections between the bioecological model and human functionality

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DOI:

https://doi.org/10.5212/PraxEduc.v.16.17383.017

Abstract

This article presents results of the participation and functionality of children with multiple disabilities due to Congenital Zika Virus Syndrome in activities performed at home. The qualitative research was carried out in Baixada Fluminense, Rio de Janeiro, Brazil. To collect information, we used the instrument Participation and Environment - Children and Youth (PEM-CY). The data were analyzed based on the references of the bioecological and systemic theory of human development by Uri Bronfenbrenner, in dialogue with the perspective of human functionality of the World Health Organization. The results showed that mothers are not only the main responsible for the daily care of children at home, but also develop different strategies to expand the participation and functionality of the child in daily activities, being, therefore, protagonists of the social and educational inclusion. They also indicated the need for intersectoral programs and actions to favor the development of these children and improve the quality of life and their well-being.

Keywords:  Participation. Human functionality. Bioecological theory. Multiple disability. Congenital Zika Virus Syndrome. Special Education.

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Author Biographies

  • Miriam Ribeiro Calheiros de Sá, IFF-FIOCRUZ

    Fisioterapeuta, Doutora em Ciências pelo Programa de Pós-Graduação em Saúde da Mulher e da Criança do Instituto Nacional de Saúde da Mulher, da Criança e do Adolescente Fernandes Figueira/Fundação Oswaldo Cruz (IFF/Fiocruz); pesquisadora voluntária no IFF/Fiocruz - Grupo de Pesquisa: Estudos socioculturais do processo saúde-doença-cuidar; Linha de pesquisa: Narrativas, memórias e trajetórias de cuidado: corpo, tecnologia e saúde. Professora colaboradora no Programa de Pós-Graduação stricto sensu  Saúde da Mulher e da Criança no IFF/Fiocruz. Pesquisadora do Observatório de Educação Especial e Inclusão Educacional (ObEE) da Universidade Federal Rural do Rio de Janeiro (UFRRJ).  E-mail: <calheirosa@uol.com.br>.

  • Márcia Denise Pletsch, UFRRJ

    Professora Associada do Departamento Educação e Sociedade, do Programa de Pós-Graduação em Educação, Contextos Contemporâneos e Demandas Populares (PPGEduc) e do Programa de Pós-Graduação em Humanidades Digitais da Universidade Federal Rural do Rio de Janeiro (UFRRJ). Coordenadora do Observatório de Educação Especial e Inclusão Educacional (ObEE). Jovem Cientista do Estado do Rio de Janeiro da FAPERJ e pesquisadora do CNPq- nível 2.  E-mail: <marciadenisepletsch@gmail.com>.

Published

2021-08-16

How to Cite

The participation of children with Congenital Zika Virus Syndrome: intersections between the bioecological model and human functionality. Práxis Educativa, [S. l.], v. 16, p. 1–15, 2021. DOI: 10.5212/PraxEduc.v.16.17383.017. Disponível em: https://revistas.uepg.br/index.php/praxiseducativa/article/view/17383. Acesso em: 2 jun. 2026.

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